Wright’s Law

28 Dec

On Christmas Eve, the New York Times featured a video called Wright’s Law on their website. It profiles a high school science teacher who has a son with Joubert Syndrome (JS). He seems like a wonderful teacher and an incredible father.

Watching this video was the first time that I had the opportunity to see someone with JS other than my son. The boy in this video, Adam, is pretty severely affected by the syndrome and while I know that JS is a broad spectrum disorder and we won’t know how TigerOne is affected until he is older, it was pretty emotional to see how JS affects this child and his family.

Ever since we got TigerOne’s diagnosis we have hoped for the best while bracing ourselves for all of the potential manifestations of the disorder. I dream that my son will be able to walk and talk one day, but have no idea if he ever will. It’s easy to get lost in the overwhelm of his possible future. This video reminds me that no matter how it all shakes out, the power of a parent’s dedication to their child is epic. Despite the challenges that JS might bring, love lives.

Wright's Law

Wright’s Law
DECEMBER 24, 2012
By Zack Conkle

Jeffrey Wright uses wacky experiments to teach children about the universe, but it is his own personal story that teaches them the true meaning of life.

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5 Responses to “Wright’s Law”

  1. amy December 28, 2012 at 10:42 pm #

    Your are such an amazing mama! TigerOne is so lucky he chose you.

  2. meighan December 28, 2012 at 10:49 pm #

    Wow. This was so powerful to watch. What an incredible teacher. I love that you are sharing your thoughts here, and in turn sharing with the world. I hope this only opens up more possibilities for you, Oscar and little Coltrane. Love you guys so much. ❤

  3. Sami December 28, 2012 at 11:15 pm #

    Thanks for sharing your thoughts and this video, Ayah. What an amazing Papa and son. Needless to say I’m sure, it made me cry. Looking forward to watching Coltrane and Phoebe grow up. xoxo, Sami

  4. A3 December 29, 2012 at 3:53 pm #

    Been up since 4:30am w/ señor fussy poop pants. This video totally made my morning. Beautiful and heart rending and parent inspiring.

  5. Mary December 30, 2012 at 7:24 pm #

    The video – and your reflection – are beautiful. The Wright family – and your family – have tapped into THE Superpower – Love! Thanks for sharing!

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